Supporting Equal Job Opportunities 

Someday, I want to plan a road trip around the nation and up into Canada, where the focus is stopping at businesses that were specifically created to give those with disabilities equal opportunities for work. 

I’ve been collecting names of these places as they come to my attention. Some are businesses created by parents wanting to make sure their growing child had a job opportunity. Others are places that are specifically made to encourage young people with disabilities to become independent hard workers. 

I’ve been looking online to see if someone else had a database list of these amazing restaurants, bakeries, coffee shops, as well as gift shops and other businesses. As of yet, it doesn’t seem like anyone else has made a list, so I thought I’d share what I’ve gathered so far.

 Perhaps you might want to grab a cookie and a cup of coffee to support these hard working adults?

Or, perhaps, you know of another buisness I should add to my list?

Bitty & Beau Coffee Shop –Wilmington, North Carolina
 www.bittyandbeauscoffee.com

Blake’s Snowshack–Denton, Texas
 http://www.blakessnowshack.com

Firefly Café & Bakery–Winchester, Virginia
 http://www.fireflycafebakery.com

Puzzles Bakery & Café –Schenectady, New York
 http://www.puzzlesbakerycafe.com

Sunflower Bakery–Gaithersburg, Maryland
 http://www.sunflowerbakery.org

Sugar Plum–Virginia Beach, Virginia
 http://www.sugarplumbakery.org

Special Kneads & Treats– Lawrenceville, Georgia
 http://specialkneadsandtreats.com

Greenhouse Inn Restaurant
Hearts & Flour Bakery
Heartstrings Gift Shop
Twice Blest Thrift Shop  –Chicago, Illinois
 http://www.misericordia.com/shops/default.aspx

Steamers Coffeeshop/Jack’s Bar & Grill — Denver, Colorado (A combined shop)
 http://steamerscoffeeshop.com

Cause Café — Fort Salonga, New York
 http://www.causecafe.net

Samples World Bistro– Long Mont, Colorado
 http://www.samplesworldbistro.com

Harvest Café — Staten Island, New York
 http://www.harvestcafe-si.org

Hugs Café — Mckinney, Texas
 http://www.hugscafe.org

Mozzeria– San Francisco, California
 http://www.mozzeria.com

Collette’s Cookies — Boston, Massachusetts
 http://www.colletteys.com

Rising Tides Car Wash– Parkland, Florida
 http://risingtidecarwash.com

International 

Bread of Life Bakery– Beijing 

Christina’s Tortinia Shop– Brampton, Ontario, Canada
 http://www.cristinastortinashop.com

Signs Restaurant — Toronto, Canada
 signsrestaurant.ca

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Do not grieve (JAF Camp 2016)

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I just recently finished serving a week at Joni and Friends Southern Oregon Twin Rocks Family Retreat. This is my fourth year serving at this camp that caters to family with disabilities. These are families who fight for their loved ones so they can get proper medical treatment, education, and spiritual care.

These families travel across the nation to participate in four days of camp on the Oregon Coast, because there isn’t something like it where they live. While more Joni and Friends retreats are being set up, the need is so great that the demand overtaxes the supply. There are families who plan their whole year around these four days, that is how important it is to them.

This camp is a place where the campers can be kids, and families can focus on just loving each other rather than being on the defense against other people’s curiosity and advice. Here they are eagerly anticipated and accepted. They are not considered ‘other’ or ‘different,’ they are simply seen as someone to love.

Short-Term Missionaries (STMS) are volunteers who come and serve these families. They are all age ranges, from 10-80 at least, who are so eager to love on these campers that they save up all year to attend. This is not a camp where volunteers put in a few hours of work in the kitchen to have a free fun time. No, this is a place where STMS are paired with a single camper and their duty is to be their friend for the week. It’s a place where they are truly missionaries whose mission is to show these campers that they are deeply loved, exactly for who they are. We have STMS who do bake sales, garage sales, mow lawns, build birdhouses, and numerous other things, to raise money, because this retreat is that important to them. $450 is a lot of money for a 13 year old to raise, but they do! And now many of them are raising about that much money again, so they can serve in the next week of camp as well. The STMs love it just as much as the families do.

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All of our camp volunteers (STMS) Nearly a 100 kind spirited people giving of their time and money to serve

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Our whole family camp! Campers and STMS together

This year our camp verse could be found in Nehemiah 8:10, “The joy of the Lord is your strength.” But, the verse is right in the middle of a sentence. What the actual sentence says is, “Nehemiah said, “Go and enjoy choice food and sweet drinks, and send some to those who have nothing prepared. This day is holy to our Lord. Do not grieve, for the joy of the Lord is your strength.”” 

Nehemiah is an amazing book full of God’s mercies and work. It’s about the Israelites getting to go back to the Promised Land, after being put into the chains of slavery due to their sinfulness. It’s about a pagan king who listened to the voice of God and allowed his cup-bearer to leave and build the walls of Jerusalem once again. It’s about the eagerness of the God’s people hearing the words of the Lord once more. It’s about the joy of finding God after years of silence (on the side of the people).

In this section of Scripture, we find the people hearing the Word of the Lord for the first time in years. They were weeping because they hadn’t heard it for so long. But, this was a time to celebrate. The Word was available once more. It was being read from early morning till midday. And the people stood to hear it.

Do not be grieved. Don’t be grieved that before you didn’t understand the Word. Do not be grieved over the past deeds, because now you have the way to make your slate clean. Do not be grieved.

It is a time to rejoice! To revel in what the Lord has done! He has done the unimaginable and it must be savored. He has brought the Israelite nation out of slavery and out of their sin and has brought them back to their forefathers’ Promised Land. The pagan king funded the rebuilding of Jerusalem! How amazing would it have been to be there, to walk back into that land that was your father’s and know that you could come home.

Nehemiah is telling these people who were weeping over the loss of time and of the Word, to not grieve, to rejoice, because that joy of the Lord is your strength. The joy of the Lord is your strength. Rejoicing and reveling in the Lord gives you strength.

These families with disabilities know what it is like to grieve. Some days, it may feel like they can never find anything to rejoice, but then the joy of the Lord strengthens them. And this camp gives them that strength.

But, at the same time, these families know how to rejoice over the little things. Things that might seem inconsequential to us, but are major milestones for their loved one. And this camp helps them rejoice over them.

Joni and Friends Family Retreat is an experience like no other. It is hard to use words to describe it adequately, because there isn’t one thing similar to pull from to compare. It is often compared to Disney, as being the happiest place on Earth, because at camp, the campers can just be kids. No expectations to fit into any mold that one may insist on being the perfect one. No trying to remember the arbitrary rules of society so that one can be accepted. No acting a certain way so that you won’t be laughed at. No explaining why you do things differently than others, why you walk the way you do, or why you can’t speak.

These people at camp, they understand. They look at you, and see simply, you. You. The one God declares Beloved. You, who God created with great love. You, whose beauty can be seen as God intended, rather than as a mark against the plastic perfection of society. You, whose talents are marveled at, whether you can sing or draw, or throw a ball, or take your first walks on screen. You, you are celebrated for being you.

Here your ticks are accepted. Here sounds that are voiced are cheered. Here you can run because its just so much, and we will run with you, rather than force you to stop. Here your mask can be left at home, and the real you can be let out to enjoy the world as it was meant to be. Here people rush to meet you. Here hesitation and fear have no place as you are loved. Here people will share their food and their space. Here the need for quiet is understood, but so is noise, and what a joyful noise to the Lord we make together! Here miracles happen on a regular basis, voices are found, friendships are made, love is given. Here, angels tread and God blesses those he calls his.

God’s love for you is your strength. He knew you when he placed you in that womb. He knew your life would be difficult, but he knew he wanted you. You were not a mistake. He rejoices in you, every minute of every day. He knows you and loves you just as you are. He gave you spiritual gifts to bless this world, don’t let anyone get between you and worshiping your Father. Share your gifts!

I know a camp where we are eagerly awaiting to celebrate them…

I highly recommend Joni Eareckson Tada’s biography if you have never heard about this ministry. Joni- An Unforgettable Story

http://www.joniandfriends.org/store/product/joni-unforgettable-story-discount/

You can also follow her radio/video series, many of which can be found here:

http://www.joniandfriends.org/jonis-corner/

For more information about Family Retreat, please see:  http://www.joniandfriends.org/family-retreats/

For more information about volunteering at a Family retreat, please see:

http://www.joniandfriends.org/family-retreats/for-volunteers/

A Valentine’s letter to God

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Dear Father,
I’m sorry.
I haven’t been talking much to you lately.
No, actually, I haven’t been listening to you all that much.
I don’t know exactly why or when it happened. I just kept putting it off. When I call you up, or acknowledge your presence, it’s more to talk at you. Not, you know, talk with.
Why does that happen?
I love you so much. I want to hear you, to see your hand on my life.
Am I afraid of something that I think you might say?
Am I hiding from some truth you need to impart?
I don’t know. That’s more than probable, I guess.
I know that I have been struggling lately with what I think my life should be like at this moment in time. We build up these fantasies in our minds about the grand things we will accomplish at some arbitrary time we’ve selected. Then we find ourselves just being disappointed.
My dreams feel as if they are turning to dust within my grasp at this very moment.
I had plans, I had goals!
I seem to have nothing to show for it.
Father, I feel rather useless at this time. Perhaps, I fear, that you see me that way as well. Maybe, maybe that’s why I haven’t been turning my ear to hear your soft voice.
I struggle to open your message and find the encouragement that I know for a fact is there. Waiting. Waiting for me to be brave enough.
I’m always rather, cavalier might be the word? about telling others that I’m waiting on your guidance. I am. That’s not what I’m almost indifferent about, but rather the attitude I attach to the waiting. Or is it what I’m showing the world?
I believe that you can guide my steps. But, am I eagerly awaiting your guidance? Maybe eagerly isn’t the word. Trepidation? Maybe that’s a little bit closer. I could probably fill this letter with the thesaurus, it helps me skirt the issue.
I feel like I should be moving, but instead, it’s like I’m glued where I’m standing. With blinders on, so I can’t even turn to see the way.
It’s this weird pull and push feel. I know I’m where I’m supposed to be right this moment. (Example: living with my 99 year old client is where you have me. I think this is possible for at least one more year, but maybe two.)
But, I feel as if there is something I’m supposed to be doing at the same time. What?
That’s the million dollar question, Ranelle.
I keep questioning how my struggle with education (i.e. getting my Master’s) will play out in my life.
Will my Master’s in Divinity be simply used in my local church? Not, that my church isn’t worthy of me using it to teach Sunday school, but I thought counseling was the dream…
What about the 8 long years of being forced to break new ground at my school in regards to finding the ties between Theology and Disabilities? 75 pages later and a failed attempt at a class, the school seems to have no interest in it.
But, the class seems to have sprouted legs and ran across the country to come to fruition under different leadership. Bittersweet for sure, excited though I am for another school to catch the bug for the issue.
I saw and felt your hand through every step of that fight, God. Now I wonder, did I falter? Did I fail you? Or was it just so I could see the blessings in my own struggle with learning disabilities?
What am I missing?
I know that you love me, that your dreams are so much bigger than I can even imagine. But, I’m afraid that I’ll miss them. That I’ll be so busy looking at my poor misguided dreams and not see the huge one you are driving towards me.
Are you perhaps saying, that my dreams are too limiting? That they were good to get me from point A to point B but your dreams for me will take me to point Z?
Isn’t it funny? I’m just as afraid of your big dream for my life as I am of you not having a dream for me.
Of me just being…me.
No assurances of me being special, or of me playing a key role in the grand scheme of things. Of me, just simply being average.
I wonder God, if all of your children have that secret fear as well? Do we all aspire to be truly amazing and fear we are mediocre instead?
Do we become mediocre when we let the fear of failure get in the way of listening to you?
I believe you as the Creator God never made a mistake in the making of your children. That’s what you forced me to come to realize when you made me work on that paper. I believe each person you have given the chance to be on this earth, has a beautifully messy purpose here.
But, because you are a just God who wants true worship, you gave us freewill.
And we – with freewill– have totally ignored our purposes and masked them with flimsy dreamscapes. Where your truth lies uneasily under our fabricated realities, poking holes trying to make us aware of more.
You know so much more and want to give us so much more.
But, afraid we cling to the darkness and the falsehoods we have built around us like a cocoon.
Father, make my life a love note to you. Remind me that though I only see the ugly, bumbling, hungry caterpillar, you see the brilliant, made new, freed butterfly in all its shining colors.
Remind me, when the world gets too loud with its false encouragements, that you see me as just right. That you see me as your redeemed child, just perfect for that special mission built for the gifts that you gave me.
Remind me, that I am special. You deemed me special, because you had your Son die a horrible death to save me.
Remind me Lord, that I am yours.
Make my life your love note.
My dreams are small in comparison to your’s. They have served their purpose, now help me serve mine.
Dream your dreams for me.
I want to walk down any path you lead me to, so please help me to see it laid out before me.
Though I am sure to stumble for I am weak of flesh, please help me to keep walking for you are strong.
Hard though it is, help me release the “should’ves, the need tos, the would’ves, and the have tos.”
This Valentine’s day, I recommit my love to you.
Your love is the only thing that can keep me on the right path and not stuck in my mind. I want to love you so deeply that I can never hear the words of doubt that dance in my mind. I want to love you so much that I race to the end of the known and jump into the dream only you know. I want to love you so much that fear has no hold upon me.
Use me Lord.

Casting Crowns “Dream for you”  {listen

The Art of Losing (Memories)

I finally got the opportunity to watch the recently released film “Still Alice.” I highly recommend this film, as it may give you the ability to understand some of the sheer terror that people face when diagnosed with Alzheimer’s.

As a caregiver, I have worked with clients in various stages of this horrid disease. It was remarkably well displayed in “Still Alice.” The film follows a renowned linguistics professor as she discovers that she has Early Onset Familial Alzheimer’s Disease at just the age of 50. Alice is a very intelligent, hardworking woman whose very life is defined by words, but she slowly starts to lose the ability to speak her beloved words. It follows Alice and her family for a year, and you can see the quick progression of the disease to the point where she can barely talk.

What I love about this film is not only the amazing portrayal that Julianne Moore does, but how they show the range of emotions that the family members have regarding the ‘loss’ of their mother and wife. You have the denial in the husband as well as distancing, the fixer in the son, one daughter wants to remember for her, while the other daughter accepts it and learns to live in it. There is so much emotion displayed in this film; the fear, the acceptance, the fight for a life that is familiar.

At the beginning, when the diagnoses is given, Alice says something to the effect that she wished she had cancer. Cancer is acceptable, people will put on ribbons, run in marathons, and do fundraisers for you. You become a vision of inspiration. But, Alzheimer’s? It’s shameful, something to be hidden. No one wants to discuss it and friends start to fade away.

We fear mortality. We fear the loss of self. And in our fear, we distance ourselves from those who are in the midst of something we dread. Think about it. You know someone with a loved one who is becoming forgetful, they are worried about the outcome of tests and meetings with caretakers. In their stress, they stop contacting you, or whenever you do talk to them, it’s all about the struggles they are going through. You start dreading the phone call. You don’t want to hear about it.

Your grandma starts forgetting the stories she has told you, just 30 minutes ago. You start to ‘correct’ her, but it makes her worried. She stops talking. Because you always say, “You’ve already told me that.”

Dementia and Alzheimer’s are diseases that erase self. They make you forget who you were, who you are now, and who you could have been in the future. It makes you forget the ones you love, and the very ability to make your body work. Some people call it the “Second Childhood.” You become dependent on others for the very things that you once took care of for your children.

Your children take care of your intimate needs as your mind forgets the ability to do certain movements. Your spouse who looked forward to an exciting retirement with you instead has to keep track of your wanderings and pills. You become the dreaded burden you always feared.

Alzheimer’s is a demeaning disease. It’s full of angst and fear. As well as intimate demands.

But.

Alzheimer’s can also be an awakening for your family. Personalities can be changed because of this disease. One of my clients whom numerous people attested to be a very hard woman, became extremely sweet in the midst of the disease. Family members were able to connect to her in a way that they were never able to before. Forgiveness was found as untold stories came to the light.

There can be a beauty in the midst of losing.

“Still Alice” uses a quote from the poet Elizabeth Bishop who said: “The Art of Losing isn’t hard to master: so many things seem filled with the intent to be lost, that their loss is no disaster.” I encourage you to live in the losing with your loved one. Do not put upon them the fear of remembering, by correcting them thirty times a day about the things they forget. Many of them already know they are forgetting. Reminding them does no good. 

Follow the meandering stories the best you can. It won’t be easy, but remember, what you are going through is nothing compared to the labyrinth in their minds.

Don’t hide them away as if they are a shameful secret. There will be times that too much stimulation will be hard for them, but hold their hand, read them stories. Engage them in life. Life may look differently for them, but they are still a part of it. Don’t remove them from the time they have among your family.

See things anew through their eyes. Sometimes the simplistic beauty of a flower becomes enrapturing. Looking at each individual petal can take all day, enter into that discovery with them. Maybe this is the time God has given you both to smell the roses they were too busy to see before.

Remember, if you meet one person with Alzheimer’s, you have only met one person with Alzheimer’s. The disease reacts differently to every brain it inhabits. Learn what is best for each person differently. Remember, that they are not the disease, they are people who still dream and hope, acknowledge that desire in them.

I have worked in private homes, adult foster homes, as well as retirement centers. No matter where I go, I see a person who deserves my respect and their dignity. It’s easy to get caught in the ‘doing’ stage and think they are moving too slow, that you have things to do. So you start shoving them into clothes, quickly scrubbing them in the shower, making them eat quicker, etc… When there is a lot to do, it’s easy to see a person as an object and move them where they need to be, rather than see them for a scared nervous man or woman who is uncertain of the next step.

I always think, how would I want to be taken care of? Like no matter what is wrong with me, I’m still someone of worth. I am still me. My self-hood is not contingent on my ability to remember your name or how to put on my pants. If I breathe and my heart still beats, I am still me. Treat me as human and worthy of your respect.

 On my good days, I can, you know, almost pass for a normal person. But on my bad days, I feel like I can’t find myself.-Dr. Alice Howland

There will be bad days. But, there will be sweet moments as well. As the disease runs it’s course, and the memories it eats run dry, there will be come a time, a week or a few days before their eyes close for good, that clarity is found. For a few hours, you will have your loved one back. The one you remember from years past. Cherish that time. It is the final goodbye.

Caregiving for someone with Alzheimer’s is a hard job. It’s even harder when that person is someone you know and love. It will make you weep and make you scream. But, if you allow love to guide you through it, it can be very rewarding as well. Find support groups, make your family get involved, and take moments in the day to remember who you are. Take a walk outside, or read a book. Take a breather. You will love them better when you take care of yourself.

I highly recommend the movie “Still Alice.” I just got the book, but I’m sure I will be recommending it as well.

Why Are There So Many More Disabled People Now?

Why Are There So Many More Disabled People Now?.

A wonderful article looking at the hard history of asylums and the entrance of those with disabilities into the public experience.

His Language is Spoken

I had the extreme pleasure of attending Joni and Friends’ first ever Global Access Conference recently. I am still struggling to put into words what I learned and to describe who I had the joy of breaking bread with while learning about their ministries around the world.

One thing that I can say with all certainty though, is that God is moving mightily among these people whom the world considers worthless.

I’ll be talking about it for some time, I am sure. I’d love for you to enter into the conversation with me, and perhaps it might get you thinking about your own church as well as your own interactions with those who are disabled.

The first topic we will look at can be found in the panel session I attended called “Learning to Speak Their Language,” which was about how to interact with children and adults with developmental disabilities and mental illness.

One of the attendees asked a question that is a common query in churches: “What if they can’t understand the Gospel?”

The panelist, who was a mother of a child who is non-verbal due to autism, said something that really struck me: “The Holy Spirit knows his (her son’s) language.

What a beautiful response! It totally wiped away any scientific, theological, or medical argumentation regarding what is human knowledge (in my mind). It brings it down to the most basic of beliefs–God knows my heart.

Theologically, we have decided that there has to be a ‘Sinner’s Prayer’ where we verbally recognize that we are sinners and are in need of God’s forgiveness. In many instances, when someone says they want to believe, we tell them that they need to repeat after me, an example of such a pray can be found on The Blessing House website: Lord Jesus, I come before you and confess that I am a sinner. Jesus, I believe that you died on the cross, and that Almighty God raised you from the dead. I pray that you forgive me of my sin, and be my Lord and Savior. In the name of Christ Jesus I pray this request. Amen

This is based off of verses such as Romans 10:9 Because, if you confess with your mouth that Jesus is Lord and believe in your heart that God raised him from the dead, you will be saved.

We must first acknowledge that while having a ‘Sinner’s Prayer’ is not wrong, it is not Scripture based. The only prayer that we are told to pray is the Lord’s Prayer found in Matthew 6 and Luke 11. There is no description of the prayer that we are supposed to say in repentance and acceptance of God’s forgiveness. There are no motions that we are supposed to do, no assigned person we are to do it in front of, nothing we are told to do but: Confess and believe.

Now, it does say to confess with your mouth. This can be a hang up for those who are non-verbal due to illness, or some form of disability. But, it doesn’t have to be! Because, as God tells Moses, who is attempting to get out of the duty that God has set before him, in Exodus 4: The LORD said to him, “Who gave human beings their mouths? Who makes them deaf or mute? Who gives them sight or makes them blind? Is it not I, the LORD?”

To echo the mother at the panel session: God made you and he knows your language. He knows your language even if you have never spoken before. No matter the language your heart speaks, God created it: Sign Language, Hiri Motu, Korean, Inuktitut, and English or the roughly 6,500 other languages in the world. The story of Pentecost in Acts 2 is proof of that:  There were Jews living in Jerusalem, devout men from every nation under heaven. When this sound occurred, a crowd came together and was confused because each one heard them speaking in his own language.

Why do we put human limitations on what God can do? Why do we make rituals take the place of the beauty of God’s encompassing love and forgiveness?

God knows your heart.

No matter your ability, God knows you. If you in your heart of hearts ask for God’s love and forgiveness, I cannot deny your salvation because you didn’t come to him the way I did. It is not my place to deny your salvation. It is my job to love you as a beloved child of God, and teach you the Gospel so you can know him.

Even if I believe that you might not understand, I am still tasked with the duty to tell you of God’s love and sacrifice to save YOU. Because when you stand before God’s throne, you will be judged just as I will, no matter the limitations that humans have placed on you. God will judge your heart to see if you have been made clean by his Son’s blood.

The Holy Spirit speaks your language and it is love.

So, to all the Christian believers out there, I urge you: Do not hesitate to reach out and speak God’s love to all you meet. No matter if you think they might or might not understand, God knows their heart. Do your duty with love and tell of God’s sacrificial love.

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Global Access–For All

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In a week’s time, I will have the privilege of attending the Joni and Friends’ Global Access Conference in California. It is the first of its kind and they are expecting a thousand attendees from 44 countries.
A thousand people who are in the midst of working to change the church in regards to disability ministries.
A thousand people who understand the importance of spreading the Gospel to all people, no matter their ‘ability.’
I look forward to the opportunity of talking to these men and women who have caught the vision already. Men and women I won’t have to try and convince of the importance of ministering to the disabled. I look forward to the opportunity to learn from these veterans.
I’ll get the chance to sit in workshops like, “Christ, Demons, Disability,” “Disability and Bioethics,” and “Using Every Spiritual Gift: People with Disabilities Ministering in the Church.” I get to hear Joni Eareckson Tada and Nick Vujicic, two influential people in my faith as well as my passion for this topic, not to mention being able to hear three authors whose books were literally Godsends when I was working on my thesis.
The beauty of being able to worship with men and women who the world decrees different, and being able to join with them to create a difference is staggering. I am so excited to be able to participate in this learning experience and be able to add my voice.
God has given me the amazing gift to be able to go to this conference. I can’t wait to see what comes from attending.
God has blessed me greatly.

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